In college, I got a bean bag chair. I also gave up the daily
exercise program I'd followed for years. There was neither privacy
nor room in my dorm. By the end of the second semester, suddenly, I
had a problem. I was in constant lower back and limb pain. I
started to need to walk with a cane.
A visit to the doctor revealed that I had a small hole in my
spine. The problem traced back to a condition called spina bifida.
It's a birth defect. In my case, I could control it simply by
getting rid of the bean bag chair and going back to my exercise
routine.
But tens of thousands of people suffer from spina bifida.
Eventually, after lots of research, it turned out that there's a
simple "cure": pregnant women need to take a daily B-vitamin with
folic acid. That's it. Spina bifida is largely preventable.
Now suppose you knew that you could make a big difference in the
quality of human life, particularly in the area of what makes a
healthy child. You wouldn't have to change anything about your own
life, other than to pay attention, and to contribute information to
a scientific study. You would do it, right? Why wouldn't you?
There are a few catches. This is a big study — you'd sign up for
21 years. You'd be a volunteer. It's not a paid job. You have to
live in Douglas County, Colorado. We are one of just 105 counties
in the United States selected from which to gather data. And most
important: you have to be, or trying to be, pregnant. (Sorry, men.
This influential opportunity is available to women only.)
In brief, that's the aim of the National Children's Study. You
can find out more about it at www.nationalchildrensstudy.gov.
Or as they put it, "The National Children's Study will examine
the effects of the environment, as broadly defined to include
factors such as air, water, diet, sound, family dynamics, community
and cultural influences, and genetics on the growth, development,
and health of children across the United States, following them
from before birth until age 21 years. The goal of the study is to
improve the health and well-being of children and contribute to
understanding the role various factors have on health and disease.
Findings from the study will be made available as the research
progresses, making potential benefits known to the public as soon
as possible."
It's hard to know in advance what the findings will be. Not all
children's health issues — diabetes, mental illness, autism,
asthma, and so on — may have such straightforward remedies as spina
bifida did.
But the way we learn big things is through the steady accretion
of small details. If you're interested in participating, and I hope
you are, understand that there are two levels.
The first, the most engaged, is only available to those who live
within particular ranges of addresses. These have been selected
randomly throughout the county. To maintain statistical validity
(and thus make the data collection truly significant), these folks
will contribute the most information. Who they are, of course, is
strictly confidential. Anonymity will be strictly preserved, unless
they choose to identify themselves.
Nor will participants be in any way judged. You never know:
pizza and video games just might be the key to childhood vitality.
A second level, those who don't happen to live at those addresses,
can still help. They can talk about it enough to help the study
recruit the first group.
They can contribute many other kinds of information that may
prove helpful. Ultimately, the goal is to find 1,000 Douglas County
participants, and more than 100,000 participants nationwide. The
National Children's Study may well help unravel issues that have
plagued our children since the dawn of time. Interested Douglas
County women should call 303-799-6257, or email ncs.co@ucdenver.edu.
It's no exaggeration to say that this study will make history.
Don't you want to be a part of it?
Jamie LaRue is director of Douglas County Libraries. LaRue's
Views are his own